Under 16 Years of Age

Having a neuromuscular condition and being under 16 years of age in Western Australia has its own set of unique challenges and supports.

The best way for a person with a neuromuscular condition under 16 years of age or a family member to use this resource is:

• Contact one or more of the Patient Organisations/Support Groups for information that specifically relates to your age and/or condition

Other topics you may find useful are listed below. Please remember there are a range of further topics you may want to explore as time goes on. These can be accessed on the right of the screen.

Disability Schemes

• National Disability Insurance Scheme (NDIS)
• Department of Communities

Support Groups, Support Programs & Patient Organisations:

• Neuromuscular WA
• People with FSHD & MD
• Spinal Muscular Atrophy (SMA) Australia
• CMT WA 
• Save our Sons Duchenne Foundation
• FSHD Global
• Genetic and Rare Disease Network (GaRDN)
• Reimagine Australia
• Carers Association of WA
• Young Carers WA
• Young Carers Bereavement Program (Lionheart Camp for Kids)
• Commonwealth Respite and Carelink Centres

Financial Aid and Subsidies

• Carer Payment
• Carer Allowance
• Carer Supplement
• Child Disability Assistance Payment

Accessibility in the Community

• Access WA
• Changing Places

Transport

• Taxi Users Subsidy Scheme (TUSS)
• ACROD Permits

Recreational Activities

• Companion Cards
• Sport

Education

• Ensuring Equal Opportunities in Education

Incontinence:

• Incontinence Pads Scheme (under 16 years)
• Commonwealth Continence Aids Payment Scheme (CAPS)