Living in a Regional Area

Having a neuromuscular condition and living within regional Western Australia has its own set of unique challenges.

The best way for a person with a neuromuscular condition living in regional WA to use this resource is:

• Contact one or more of the Patient Organisations/Support Groups for information specific to your regional area

Other topics you may find useful for living within a regional area are listed below. Please remember there are a range of further topics you may want to explore as time goes on. These can be accessed on the right of the screen.

Disability Schemes

• National Disability Insurance Scheme (NDIS)
• Department of Communities

Advocacy

• What is Disability Advocacy?
• Advocacy Agencies

Support Groups, Support Programs & Patient Organisations

• Neuromuscular WA
• People with FSHD & MD
• Spinal Muscular Atrophy (SMA) Australia
• CMT WA
• Save our Sons Duchenne Foundation
• FSHD Global
• Genetic and Rare Disease Network (GaRDN)
• Reimagine Australia
• Carers Association of WA
• Young Carers WA
• Young Carers Bereavement Program (Lionheart Camp for Kids)
• Commonwealth Respite and Carelink Centres

Accessibility in the Community

• Access WA
• Changing Places

Transport

• Taxi Users Subsidy Scheme (TUSS)
• Mobility Allowance

Travel (For Healthcare or Vacation Purposes)

• Air Travel for People with Disabilities
• Patient Assisted Travel Scheme
• QANTAS Carer Concession Cards
• Virgin Australia